I’m in the process of adding more resources and updating this list. Let me know if there are any broken links, if something’s missing or if there’s something that you would like more information about.
Resources for Patients
Resources for Finding Support and Information
National Cancer Information Center (NCIC)
A program of the American Cancer Society, the National Cancer Information Center provides information and support to those facing cancer 24 hours a day, 365 days a year. Trained cancer information specialists are available via phone, email or live chat, providing accurate, up to date cancer information to patients, family members, and caregivers and connecting them with valuable services and resources in their communities, including information on insurance, support groups, and other resources. they will match you up with the programs that will meet your specific needs.
Patient Navigator Program (Personal cancer guide)
The American Cancer Society Patient Navigator Program connects you with a patient navigator at a cancer treatment center. You can talk one-on-one with a patient navigator about your situation. This person will listen in your time of need. To learn more about this program, call:
National Cancer Institute’s Patient Publications
You can find downloadable resources as well as request publications to be mailed to you free of charge. There are also resources available for caregivers, family, and children.
National Cancer Legal Services Network offers referrals to free legal services programs so that people affected by cancer may focus on medical care and their quality of life.
An Adult Respite Program, North of the Tension Zone
Priceless 4 Purpose grants adults affected by cancer and undergoing active treatment in Minnesota up to 3 nights respite time at Mystic Views alone or with an adult loved one of their choosing, providing a peaceful, calm distraction, free of sights and sounds of a hospital room or doctor’s office at no charge. We understand the financial burden that comes with a cancer diagnosis. It is for that reason that we provide our mission at no charge.
Our volunteer organization works tirelessly to support 100% of all requests for the Mystic Views adult respite program costs with grants and donations.
Resources for Caregivers
Caregiving is hard, so I hope that these resources will make coordinating care for your loved one—and live, easier during this difficult time.
Caring Bridge Care Coordinating and Blogging Site (my favorite)
Resources for Specific Cancers
Check out our page filled with links to resources for mesothelioma patients.
Lung cancer patients seeking assistance can call LUNGevity‘s new toll-free HELPLine, 844-360-LUNG (5864), from 9:00 am – 5:00 pm ET, Monday through Friday to:
- Receive immediate access to reliable educational resources and programs
- Get personalized information about lung cancer and treatment options
- Learn effective ways to cope with cancer including managing emotions such as depression, anxiety, or sadness
- Improve communication with their health care team and loved ones
- Get referrals to financial assistance resources for needs including pain medication, homecare, childcare, medical supplies, transportation for treatment, and copayment assistance related to chemotherapy and targeted treatment therapies. (Provided to those who meet CancerCare’s eligibility guidelines; subject to funding availability.)
Stage IV Cancer Support
A CANCER diagnosis can cause intense fear –
Stronghold Ministry helps take the fear out of cancer.
Are you or a loved one fighting cancer?
Have you just been diagnosed and looking for help?
Have you been battling for a long time and wanting to give up?
We understand and we can help! Our founders, Joe and Terri Fornear, have been through an intense Stage IV cancer battle with metastatic melanoma and Joe has been cancer free since 2003. The Lord was their Stronghold – holding on to them when they were too weak to hang on to Him. This is how we got our name.
“He only is my rock and my salvation, My Stronghold; I shall not be shaken.” – Psalm 62:6
Resources for Supportive Friends:
It’s common to feel powerless to help when a friend has cancer. The following websites will give you ideas of ways you can help your friend through this time.
Resources for Parenting with Cancer:
When you have children, the impact of your illness on them is as big a concern as anything at this time. Check with your cancer center or clinic to see if they have a social worker who can give you resources available in your area.
Facing Cancer Together (FaCT)
For children and teens affected by a parent’s cancer, Sponsored by the Angel Foundation The Angel Foundation (Minnesota)
Cancer support community: info, resources, support for all cancers and caregivers
(888) 793 – 9355
Cancer really sucks: info, resources, and support for teenagers affected by cancer
When Your Parent Has Cancer: A Guide for Teens: a free handbook from the national Cancer Institute
Camps and Retreats for Families and Children Affected by Cancer
American Society of Clinical Oncology
Information on parenting, talking to family members about diagnosis, child understanding
See if there is a Gilda’s Club near you. They have support groups, education, healthy lifestyle classes, social opportunities, information, and referrals.
Information, resources, and support for all types of cancers
Helping children understand cancer
Cancercare for Kids
Free counseling for children and parents
Join their online community to share stories, blog, and talk in an online chat room with other patients and
survivors. Visit cancer survivors network
Call the American Cancer Society 24 hours a day, seven days a week: 1-800-227-2345
Recommended Books for Children
Someone I Love is Sick: Helping Very Young Children Cope With Cancer in the Family
Mom Has Cancer!
The Rainbow Feelings of Cancer: A Book for Children Who Have a Loved One with Cancer
Carrie Martin and Chia Martin
The Hope Tree: Kids Talk About Breast Cancer
Laura Numeroff and Wendy S. Harpham
Butterfly Kisses and Wishes on Wings: When Someone You Love Has Cancer…a hopeful, helpful book for kids Ellen McVicker
Love Sick: Teens reflect on Growing Up with a Parent Who Has Cancer
(For Teens By Teens)